Nothing hugely dramatic this week. Glen is experiencing a (for now) slow but steady decline. His speech is markedly worse.. frequently if he says something, we have to mute the tv and ask him to repeat himself. What I genereally try to do is repeat back what I think I heard, or as much of what he said as I think I understood. I try to remember to use yes or no questions as much as possible.. I'm still guilty on occasion of giving him choice a or choice b.. to which he will nod his head yes or no leaving us all very confused. We try to inject as much humor as possible and try to keep the mood light.

At one point this week after Glen had missed an afternoon dose of his anti-psychotic medication, he seemed so much more alert that I decided to see if we could back off that dose. Unfortunately the trade off was an increase in odd behaviors. Last night he wanted to go upstairs (pretty much off limits to him)... when I asked him why he told me "because there's a beautiful creature up there." He was also insistent on going upstairs, outside, for a walk, etc. So it came down to a choice: more alert but making worse choices, less alert but safer. After talking it through Kev & I have chosen safety... which also means things are much more peaceful and calm.

He's also sleeping more.. goes to bed earlier, sometimes takes two naps instead of one, semi-dozes while watching TV. If I had to guess, I'd say his CO2 levels may well be starting to build up. On the other hand, he said this afternoon that he misses USF basketball and we talked about the fall season.. I even got him to agree that if we did get tickets, he'd agree to use the wheelchair to get to and from the gym. Big concession on his part, but he couldn't go for a walk today because of quad cramps, so I think it might have just been timing.