One more mission accomplished: Glen called his boss and told him he'd be taking vacation from now through the Friday after Disneyland. His boss was fine with that. Glen must have commented at least 3 0r 4 times how relieved he felt that he didn't have to worry about going to work. I'm pretty sure he won't be returning to work full time. Whether he wants to go back at all we'll discuss after vacation. For now.. he can be more relaxed going to sleep knowing he won't have to get up at any particular time.

Glen decided we should go out to dinner last night, so when John came over we went to MegaByte.. Glen's favorite eat there pizza place. Wonderful visit, great pizza, one pretty bad choking incident (sorry John.. hope we didn't traumatize you TOO much!) Stopped on the way home for hot chocolates all around, and Glen managed to stay up and visit until almost 10! He was actually reasonably engaged in what we were talking about which was nice to see, and told John about his upcoming birthday breakfast with Goofy.

Today Kim from the ALS Association came for a visit. It was lovely to meet her in person. I can see she's going to be a great source of practical, solid answer information! She told us the MDA has a Loaner Closet where we can borrow equipment the doctor has okayed, until we can facilitate getting our own. (Sometimes the need for something sneaks up on us quickly.) And yes.. that's the Muscular Dystrophy Association. Glen is registered with them as well as ALSA and gets quite a kick out of being "one of Jerry's Kids".

Among Kim's suggestions was that we seriously consider hiring some help with the yard and housework so that Kevin and I don't totally burn ourselves out. Again... when we get back I will try to look into it. Sharon's been after me for probably two months now to do exactly that. Now.. after surrounding myself with smart people I must learn to take their advice. Kim also made a comment that I believe was the highlight of Glen and Kevin's day... we were talking about Glen having to learn that he cannot work out to the point of exhaustion, because if he damages muscle, it won't recover. Kim commented that it sounds so easy.... then turned to me and said, "but ... it would be like someone telling you you can only spend seven minutes a day organizing." I said, "But... but... I'd end up eating the sofa pillow!!" She smiled and said, "Exactly." I tried the innocent, Scarlett O'Hara "whatever do you mean!?" face... but nobody was buying it and the men in the family had a good chuckle. Kim also thinks the BiPAP machine is going to help Glen feel much better.. we have respiratory therapist appointments mid-October.

After Kim left, Kevin and I were actually able to go get some lunch and do the grocery shopping. Glen took a nap while we were gone which was excellent... he was relaxed enough he actually slept, and because he slept he wasn't sitting here worrying about why we were still gone. I called once while we were out (woke him up.. oops) to make sure he was ok. He went back to sleep and didn't wake up until we got home.

I don't think we have any big plans for tomorrow... wouldn't that be nice? I probably shouldn't get my hopes up though!!