Good evening good people! Been a long day (and I fear I may be a little under the weather.. hopefully just fatigue!) but let's see if I can catch you up.

We met with Dr Loemen-Hoerth at UCSF today. What a very nice lady. She looked over Glen's records, did some testing of her own, talked with both of us. Nothing surprising in her conclusion that yes it's ALS. She did address the cognitive issues more than anyone before her, and again pretty much confirmed what we already knew, that there is in fact cognitive involvement/impairment. She sent us home with a lot of literature to go through... Glen was reading one of the items on the way home and said, "This says I need to drink more liquids." Slapping myself aside the head I gasped "Wow! I should have thought of that!" Yes.. I do occasionally resort to sarcasm. Go figure.

So, she will be asking Kaiser for the result of his sleep test so her respiratory therapist can review it; sending some recommendations to the neurologist regarding changes in medication/dosage to help address the anxiety; and suggesting a few more tests. She also was interested in Glen taking part in a medicine study but wanted all three of us to look it over and decide because it involves the placement of a catheter in his neck, and weekly trips to UCSF. At first glance, there's also some concern for me because the medication they are studying can have adverse effect on the kidneys, and he does have a family history of kidney disease. So.. lots to talk about, lots to think about.

In the meantime, we had a somewhat more serious issue with choking at dinner tonight.. I really need to watch what size bites he takes more carefully. Which he resents. And around we go.

But I will finish this post on a good note... when we got home from the City, Glen was really tired and actually listened to my suggestion that he take a nap. When he got up, he had a snack of Ensure. After his nap & snack, he took his bike ride and came home with a HUGE HUGE grin on his face.. he said it felt REALLY good. So... apparently the whole rest and hydration thing works?
Love y'all.... g'nite!