Good evening wonderful readers. Bit of a long and tiring day for Glen especially. Met with our financial advisor today... about a 40 minute car ride, which he handles pretty well. But then there were discussions of things Glen preferred to not talk about when he was healthy, let alone now! Bottom line though is that financially short term, we will be fine, and long term I will fine. Not really a surprise, but good to have confirmed.
Interesting day yesterday.. Dr North wants Glen to be seen by a psychiatrist, see what's going on with the FTD. So preferably someone with an interest in neuropsychiatry. I told him we had been referred once before and were never able to get past the "moat and dragon" Kaiser uses to surround their specialists. Instead, Glen had a couple of appointments with a therapist that referred us to a couples communication class and told Glen he didn't need to come back. Doctor said he'd give us some help getting past the fortifications. So yesterday.. we get a call from Kaiser Santa Teresa starting the whole intake process all over again... and asking if we wanted to see Glen's previous therapist again!!! Um.. no? She totally missed that there was anything going on, why would we want that again? Plus, she can't do anything about medication tweaking anyway! Mentioned ALS at least 3 times.. woman on phone didn't care. Got mad at Glen when he didn't respond to questions on the phone.. hello, ALS, doesn't talk much. I was upset when I got off the phone, and Kev suggested I e-mail Robyn, Dr North's wonderful nurse. I did, got an answer within 1/2 an hour saying how sorry she was this had happened and that she'd pass the info on to the Doc. Phone rang as I was getting dinner into the oven... it was Doctor North! Can you imagine having a doctor that cares so much about your personal situation that he phones!! Last doctor I knew like that was the one taking care of my grandma.. 30 years ago!
So... he said not to worry, he was going to find someone for us and get it set up. And I somehow believe he'll find a way to make it happen. He and Robyn are very protective of their ALS families. It's very reassuring.
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